Saturday, May 28, 2011

what will make a difference?

I think although TS itself may cause considerable problems, for most the overwhelming issue is discrimination and bullying, not tics or other symptoms. As bad as they can be they just don't compare with the desolation so many feel because of the way they are treated by others. That's the bit that truly sucks and for me the thing that needs to be changed more than anything! 

I'm not convinced that millions of dollars for research, looking for a 'cure' and trying to educate inadequate doctors is going to make the biggest difference at this stage. It's the lives of kids growing up with TS now that matters (and adults too) and things will only improve with awareness and legal protection neither of which really exists in any substantial form.